YouTube Star

Would you like to see Sandy and me on YouTube? Here is your opportunity. Sandy and I are YouTube stars. It isn’t exactly like we have our own YouTube channel, but we are featured in a video put up this week by the National MS Society. In the 10 minute video we talk about MS and touch on paraplegia, how they affect our lives, and the importance of rehab therapy, both Physical Therapy and Occupational Therapy.

Here is your golden opportunity. You don’t want to miss this! 😉  https://www.youtube.com/watch?v=Gya3VML1Isc 

There is some riveting video of me doing PT and OT as well as the two of us doing PT in our pool. Yes, there is a glimpse of a wheelie. I actually held it for two minutes. I can, in fact, pop wheelies.

We would love for you to see this and would be honored if you do. Please leave any comments or questions below.

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Hot and Hotter

“Stay cool and hydrate.” This is what I often add to my National MS Society emails during the summer months. “Stay cool and hydrate.” I tried.

I can’t exactly say what went wrong, or where it went wrong. Nonetheless, the combination of the summer heat and my MS almost got the better of me. Had I not been doing things right, I shudder to think.

Sandy and I love our home. Over the years we have tried to take care of it. It got a new kitchen 5 years ago and new bathrooms last year. Small projects we do ourselves. The current project involves stuff, things we possess that actually possess us. A great deal of it was in the garage. For unknown reasons, we decided to paint the interior. I followed the hydration advice given to us by a professional tennis player who has MS. Electrolyte water to start the day, and frequent water. I rested inside to cool down and supplemented the water with an occasional sports drink. I tried not to push too long.

I failed. By evening my core temperature was up, my energy level down. My face felt hot, my body felt cold. I was in the beginnings of heat exhaustion. Thankfully I had hydrated well and was not dehydrated. It’s been a little rough, as that triggered an MS exacerbation. (An increase in already existing symptoms or damage, not new symptoms.)

So what does this tell us? MS or not, “stay cool and hydrate.” Summer is here, the sun is at its most direct, the days are long. Follow the basics and look for signs of possible road blocks. Have a great summer!

Bass and Burger

Is there a more fun place to shop than Bass Pro Shop? Fishing? I’m not a fisherman. Hunting? Nope, not a hunter, either. Boating? In my dreams.

Inside the massive arcade is an world of nature. Outdoors, air conditioned, sun protected, and dry. There are smooth floors on which to glide. Did I mention indoor plumbing? Everything that is outside is inside to see, touch, and enjoy. People, too. Watching people is a major sport in this tourist town.

We got some items we actually need. Wick away shirts for summer, sun protection gloves to get that extra power propelling my wheelchair, and canvas fanny packs.

An afternoon in the inside outdoors works up a mighty mean hunger. I’m talking Gators Dockside Swiss and mushroom burger with fries hunger. We were joined by Stella. What a fun way to spend a hot afternoon!