Top ten things not to say to a wheelchair user – ever. And then some tips.

After I commented on my friend’s blog in regard to vision, she suggested I apply the topic to wheelchair users. I’ve had a lot of things said or done to me because of my ever-present wheelchair, and some of them should never be said. Maybe you are curious, so here are the top ten things never to say to a person who uses a wheelchair.

#10 Don’t talk to me standing up if you can sit down unless you are trying to intimidate me. It won’t work, but it will make me angry. Sure, if you are serving in a restaurant where the patron would normally be seated, that’s different.

#9 “Do you have a license for that thing?” Enough with the comments about a driver’s license or about speeding.  We have all heard it many times. Maybe even already today. Instead say what you would say to a person who is walking by, “Have a nice afternoon.”

#8 “You drive!?!” Yes, I drive, quite well in fact. For the most part it’s no one’s business if I drive, and most people assume I do. If, for example, your new neighbor is a wheelie you might inquire about driving, asking if he/she will explain or show you how they drive. Most of us love to demonstrate.

#7 “Can you walk?” Unless you are the TSA or the gate agent in an airport, it’s none of your business if I can walk. If I could walk I would. Granted there are some wheelies who can walk short distances. But whose business is it anyway?

#6 “My grandmother had one of those.” Oh, did she? Do I look as old as your grandmother? The implication is that I’m old and feeble like your grandmother. For the record, before writing this I did a seated aerobics session.

#5 “What’s wrong with you?” Oh, most of us do hate that one. Quite frankly, nothing. There is a reason we use a wheelchair, but that reason is often in the distant past. It might take only seconds to damage the spinal cord, and then it’s over. After the initial damage, nothing is wrong. I have a family and a good quality of life. I just do it sitting down. When you think about it, that’s not so different.

#4 “How long have you been in a wheelchair?” Let’s see, I’d say about 30 minutes. Did you mean, ” How long have you been a wheelchair user?” I might tell you and I might not, depending on the circumstances. Are we becoming friends? Then it’s a natural question. Otherwise, if it isn’t intruding, perhaps, “You seem experienced.”

#3 “Here, I’ll help.” Most times I don’t need or want help. I function fairly well. I am grateful when someone asks, “Do you need assistance with that?” “Would you like me to help you?” So many times well meaning souls intervene and create a bigger problem. Politeness and courtesy are excellent guides.

#2 “I’ll push you.” NO. Please don’t do this. If I’m struggling up a hill, having someone ask might be nice, but then I can show them how do do it safely. I have to share this with you. When I was a newbie I was in the restroom on a college campus in Richmond, IN. I had conducted that for which I’d come and was washing my hands. A man emerged, said “Here, this will help,” as he grabbed the handles of my chair, picked the back up, and spun me around before departing as quickly as he’d emerged. I was now stuck and had to go back where I’d been, take the wheels off, and put things back the way they needed to be. From my next chair to this day, they have all have had handles that stay down and can be pushed up if needed.

#1 Here we go with the most insensitive and degrading words in the life of a wheelchair user. “Bound” and “confined.” Just writing those words raises my blood pressure. “After his accident he is confined to a wheelchair.” Why am I confined to a wheelchair? Did I make my lovely wife mad, and she is making me sit in the corner? Convicts are confined in prison. My wheelchair is my liberator. It is how I move, how I cook dinner, how I travel. Then there is the word bound. “He is wheelchair bound.” What? How? With duct tape? With rope? Butcher’s twine? Maybe a garden hose? It is the wrong word and has a demeaning connotation. Instead please use phrases like “uses a wheelchair” or “is a wheelchair user.”

img_2896So here I am in the park. (Balancing my trunk with my elbow on the picnic table and my hand on the seat.) Not bound, not confined, not even in my wheelchair. It’s a miracle! Actually it is. My custom fit, titanium wheelchair is a miracle of progress, a prosthetic body that serves me well.

Tips: I’ve been ripping up well intentioned people to make a point and maybe let off a bit of steam. Let’s focus on the positive and how we can work this together.

Thus far we’ve put responsibility on you, not me. I have responsibility, as well. Let’s talk about the responsibility the wheelchair user has, and it is significant. People do not know what to expect. Perhaps they have overestimated someone’s ability and been embarrassed. First, we need to direct our own show. We need to push ourselves, if we can, into the restaurant and up to the greeter. When asked how many, proclaim the number with a smile and with confidence. People who use wheelchairs have differing abilities. Show yours off in a positive light. Then there is posture. No one looks good with bad posture. Do your best. The same goes for clothing and hair. A clean, stylish appearance says more than anything. There are any number of websites and blogs that show how women and men can look nice on wheels. And please don’t take yourself too seriously. In a restaurant a young couple very kindly moved their chairs and their baby’s high chair, so my chair would fit through. I thanked them profusely and said, “I’m pretty wide.”

Thank you so much for stopping by. I have a good life with a loving, supportive family. Wheelchair users have some frustrating limitations but make the most of what we can do. Please comment or ask questions. Again, thanks.

Picture shows George sitting at a picnic table in the park. His body is turned sideways with feet on the ground. Elbow is resting on the table, and opposite hand is on the bench for balance. Posture is good. His wheelchair is not in view.

Before the rain

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Whether we ride a bicycle, tandem, or wheelchair, or if we walk, there is something and someplace for all of us. Our place this week was Disney’s Animal Kingdom, our new “go to” park. We finally had a day that was forecast to be cloudy with rain in the afternoon and a high of only 84. We seized the day and trekked off for some change of scenery.

The summer has been brutally hot. It started off okay until I had the mother of migraines. A week of this led to a sinus infection which led to an MS exacerbation and a subsequent ear infection. Do you know how far a person can slide in a month?

Animal Kingdom seemed like a great idea, and that proved to the case. Apparently everyone in Florida agreed. Despite the addition of extra security tables and personnel, the lines were long. Other than the year we went on Christmas Day, this was the busiest we’d seen this park. Nonetheless, there are a lot of services and spaces to stop.  Just don’t get too picky. It is good to be lucky, and we got a lunch spot in a shelter house right by the lake. The turkey breast on multi-grain bread is excellent, and you get grapes instead of fries.

While we were eating it rained, which added to the ambiance of a nice lunch. Also nice was the rain ending just before we finished lunch. Our cool day? Didn’t happen. It was hot and muggy, and the sky was beginning to look ominously dark. We’d been there a few hours, watched people, eaten lunch, and it was time to move toward the exit. Just in time!

If you will look above the bikes, you will see a wonderful sentiment. “It matters not who you are or where you are from, we are all children of the world.”

Thank you for stopping by. It is an honor and a pleasure to have you. Make my day, leave a comment!

Picture is the side of an old hotel and bicycle repair shop. There are an old tandem and an English style bicycles. Some notices are tacked above, and a saying is written on the building, quoted in the text.