25 years later

George is stretched out on the sofa. He has blond hair and glasses with an orangish tint. He is wearing a black, Mickey and friends sweater with white snowflakes, black pants, black headphones, and he is barefooted.

At first I blamed it on the new shoes, the fall in the mall and the second fall later in the day. It didn’t seem right, though, as they were an exact replacement of the ones I loved. It was my introduction to MS. Later came the ice storm and a more serious fall. Finally after exhaustive tests with lots of E’s in their names and 24 vials of blood, we met with my neurologist.

There was no drama, no tension. He told us what we already knew. The MS is progressive, and there is too much spinal cord damage for you to walk again.

After a struggle, MS put an end to practicing optometry, though I never lost the love and try to stay current. I’ve been a disabled parent and a licensed swim official. I volunteered at the hospital where I edited the volunteers’ newsletter. Then one day I called the National MS Society for information and was soon a Peer Counselor.

So I’ve officially been rolling for 25 years. Somewhere along the way I learned Rock your disability! It was a life changer. If I have a message it would be that going through a progressive disease is, at times, agonizing. A few years ago my neurologist managed to sort out the MS from the injury. That explains things that are going on now, but it doesn’t change my resolve – or yours. I know my followers, and you are strong. And kind.

Thank you for your support, and this is probably the last you’ll hear of my Paraversary. Twenty-five is a big enough number, and I’ve long run out of fingers and toes. It’s time to quit counting and roll on to the next challenge.

Thank you for stopping by and for indulging me whilst I look on some emotional times. Thanks to Sandy and Cliff for their unwavering support and the sacrifices they have made to keep me mobile. I’m blessed more than what I could possibly deserve.

Photo: George is stretched out, on his side, on the sofa. He has blond hair and glasses with an orangish tint. He is wearing a black, Mickey and friends sweater, black pants, black headphones, and he is barefooted.


12 thoughts on “25 years later

  1. I wonder is the no walking talk as tough as the other, the no you really shouldn’t drive? Of course everyone takes the news differently, but I’ve always wanted to ask an eye doctor how often they get to deliver the news… (and wild guess: probably not often enough. I know too many people with glaucoma or cataracts or other ‘fun’ that still drive)…
    My uncle lost both his legs 4 summers ago, around the same time my mum died. He’s told a lot of his previous friends disappeared, even a few that lived less than a mile from where he was in hospital. I don’t quite get people – he’s still my uncle, still the same person (just a bit more concentrated now). Still fun to hang out with, or to enjoy his cooking. Like all the changes are part of the life. Learn to laugh again if needed after a big change (and, maybe, accept a bit more of mortality sometimes)?

    Liked by 1 person

  2. With anniversaries you want to say ‘Happy…” first, yet this ‘Paraversary’ is one of those bittersweet things to recall and to keep count of. I will, however, disagree on your point of being “blessed more than what I could possibly deserve”, because you deserve the moon and the stars and more. I hope 2019 is a healthier, happier, brighter year and I’ll look forward to following your journey xxxx

    Liked by 1 person

  3. This was an insightful read, I love that you rock your disability and encourage and support others on a daily basis. I feel lucky to have met you, even if it is only on the Internet.
    25 years is a long time, yet it’s your prerogative to reminisce as often as you feel Xxx

    Liked by 1 person

    1. Thanks for the kind words. I think some bling on assistive devices is not only fun, it’s important. We have no need to be ashamed or intimidated because we do things differently from the majority. I have made many friends with the initial connection being disability. I am very glad to have met you, and perhaps we can make the connection in England!


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