Popping Wheelies

Making MS lasagna

How to make MS Lasagna… (This is a repost with minor modification for accessibility that seems quite timely. Thanks. – George)

Start with noodles that go soft in the heat, like my muscles. Add some oil like sunscreen to protect from burning. A little pepper and maybe some rosemary. And finally toss in the MS. Bake at 99°F (37°C) every day for a week. Remove from oven briefly, add a dash of pain, and bake another week. My summertime motto of “stay cool and hydrate” isn’t cutting it this summer. We aren’t getting the usual rains to cool the ground, and it feels like the desert if deserts steamed. It’s about too hot and bright to use the pool where I cool off and also exercise. So I’m behind. I’m here if you need me. Send me a message if I can help. Summer – we’re in this together, and if we stick together we can get through.

George sitting in a plywood cutout, so wheelchair isn't visible. Appears to be in a car with silhouette of green batman-shaped ears above.

Image: George is sitting in a wooden cutout of a car. He is wearing a Disney visor, sunglasses, green shirt, and workout gloves for pushing the wheelchair. 

22 comments

  1. Here’s something you might try to cool you down and maybe ease some pain. Take water bottles and freeze them, then once the water is frozen, take out two bottles and roll them back and forth under your feet. It helps reduce swelling in the feet and cools your body temperature down. It’s not a pool but maybe it will help! I hope so…I’ll pray for some rain and cooler temps for you too! 🙂

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  2. My PT had suggested something similar for neuroma and a metatarsal that is getting pushed out of place. Because I can’t control my feet, it becomes a matter of rolling my legs by using my hands. I’m ultra cold sensitive, so it becomes a chore – a chore that needs to be done, thanks!

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  3. This sounds absolutely miserable George. I know how awful I feel when I’m not feeling well when it’s hot, hazy and humid and I can’t begin to imagine how the misery is magnified with MS. Not having access to an accessible pool is another topic of frustration.

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  6. I’m sorry the heat is wreaking such havoc George. Those Florida summers can be daunting, especially when there’s no rain. I hope you get some rain, but not too much, from that tropical system. Take care and try to stay as cool as possible.

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  7. I love your sense of humour with this, George! Soft noodle muscles, that made me chuckle. I’m so stiff today that I think my noodles have been baked, not boiled 😂
    I live in the UK so our summers are very hit and miss. I also struggle with feeling the cold a lot, so I welcome the warm weather. That said, we get odd hot days and then it’s very heavy, that hard-to-breathe-or-move kind of oppressiveness. I can only imagine what it’s like in your part of the world. Try to stay cool – do you have ice packs/wraps, for some quick cooling down? I know it’s only temporary but it can be a bit of relief, and not too bad for pain either.
    Caz x

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    • I have some cooling things – if I remember to take them along. Also BioFreeze. The cold is worse for me than the heat. I lose power in the heat but get stiff, have spasticity, and got hurt in the cold. – I checked a London weather, and your day seems perfect. Most of the US is hot, so relatively we are better off here than other places.

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