On the 35th day it rained

In the foreground are a small, low bistro table and 2 chairs. Behind is a very wet screen. And further back are a wet, brick patio with blue and white Adirondack chairs, a white statue, and in the very back an elm with new green leaves.

Has it been 29 days since the last entry here?

I fear I’ve let time slip away during this time of Staying Home. I’ve tried to stay up to date on my Instagram account (@grector71). I’m behind on reading blogs but have been working on it. Mostly Sandy and I have kept the house neat and clean (Yes!) and read books with our Kindles out on the patio in the fresh air.

Back to my photography roots

I have been learning about finding our passions. We each need to feel passionate about something. Priority for me has always been my family and friends. After that my passion is photography. At one time my camera bag weighed 17 pounds (7.7 kg). That was long ago before MS, paraplegia, and the ever present, trusty wheelchair. Since the move to Florida, my 5 ounce camera has sufficed. In an audioblog I listened to last November, the advice was to rekindle our passions by returning to our roots, where we first started. Go back to that and know the joy all over again.

I recalled the thrill of my first 35mm camera, how it felt in my hands, and the moments I was able to capture. Then a few years later came my first SLR. I looked at some of the photos I made with a small zoom and realized my joy of photography again. The pictures taken up close, where the subject feels personal. The street photography that is so much fun. And thus began the search for the perfect retro, digital camera. Retro and digital in the same sentence? It was not an easy task.

I almost settled a couple of times but remembered how long I had saved to buy those first good cameras and stayed patient. On my desk is a not so expensive black and silver toy that looks like my first rangefinder and can be operated exactly like my first SLR. I can use the viewfinder or the screen depending on what glasses I’m wearing and the light. It just feels good in my hands. So here I sit, cruise cancelled, Staying Home. On Day 35 it rained. First time in over a month. Aha! A new subject has appeared. Water!

Stay safe, my friends

Please stay safe. Follow the guidelines of your area. I’m more than ready for the Caribbean as opposed to my elm tree. I know you have your own “elm” and are ready, too. What have you been doing? Do you have plans?

Thank you for stopping by. Your presence is always appreciated, and comments are welcome. Blessings.

– George

Picture description:  In the foreground are a small, low bistro table and 2 chairs. Behind is a very wet screen. Further back are a wet, brick patio with blue and white Adirondack chairs, a white statue, and in the very back an elm with new green leaves.

Rocking on the porch

Panoramic view from George's glider. Potted grasses, empty planters, a bright blue bench, empty planters, a white, Greek statue. In the lawn is a tree without leaves. Sky is deep blue with white clouds.

Day 6

This evening marks six days of officially Staying Home. More to come, of course. The only question is for how long. In the interim, Sandy and I are rocking on the porch. We both have health conditions that put us at risk, and we are staying home. Social distance, as it were. Talking to our neighbor from a respectable 30 feet!

Sandy in a blue and white glider chair. She has red hair, a light green t-shirt, white shorts, and glasses.

It isn’t that we don’t have things to do. We do, indeed. Who wants to do “projects” when the spring that finally arrived is beckoning on the back porch? We have watched the sunrise and the sunsets. I’ve taken some pictures of the ordinary. These things become beautiful if we wait for the light and take our time. It has been rather refreshing.

Natural pottery colored planter in the form of an antique truck. In the bed is a large, soft cactus plant that overflows the sides. The morning light is angling across the plant and front of the truck.

 

 

Sometimes we need to follow local events and ignore the hype and misery of the press. This is one of those times. We are trying!

George is in his blue and white glider. Beyond is his wheelchair. He has blond hair, sunglasses, and is wearing a blue, classic Mickey Mouse t-shirt, and dark blue shorts.

 

 

It’s not like I don’t have anything to do. I need to take advantage of this nice weather to spray liquid fertilizer on the shrubs. Then I need to fix the weed sprayer and eliminate the pesky plants that we don’t want. Ironing! If I ironed the summer shirts that have been waiting since fall, I’d have some crisp cotton and linen to wear whilst staying home.

A word about small business ingenuity

Two loaves of freshly baked bread. Each is wrapped in a clear wrapper with the type of bread printed on the label. White on the left and wheat on the right. They are on a wooden cutting board on the granite countertop.

The grocery stores are picked clean. There is literally no bread to be found, for example. (And I promise I won’t mention the toilet paper crisis.) Meanwhile restaurants are empty with the fallout being that our small town, wholesale, French bakery needs customers. They posted on the local Rants and Raves Facebook group that beginning today they would have bread and sweet breads available. And cookies. They created a drive thru system of ordering and picking up bread at the first entrance and paying at the second entrance. Employees are wearing gloves and masks. They report a steady line all day today. Tomorrow they will expand the menu. The public gets bread. The bakers get work. Win, win! The bread is delicious, and the cookies (biscuits for y’all in the UK) are soft and yummy. Chocolate chunk, peanut butter, and oatmeal raisin. Awesome! We did leave the house for this fresh, wholesome product delivered in a safe manner outdoors.

Tomorrow, day 7

Maybe tomorrow will bring fertilized plants, dead weeds, wrinkle-free shirts, a clean floor, and dust-free furniture. Maybe it will bring more quality time together on the back porch. What do you think it will be? If you guess quality time, you will be right, for sure. With Jupiter, Mars, and Saturn directly above in the crystal clear sky, Sandy and I bid you Good Evening Sandy in the evening, in the glider.and wish you and your families health, safety, and quality time together. And before I stop, we’d like to say a big THANK YOU to all of our first responders, medical people, and everyone who are working so hard, taking chances to protest the rest of us. And let us not forget their families. Blessings. 🙏

 

Picture Descriptions:  Main photo is a panoramic view from George’s glider. Potted grasses, empty planters, a bright blue bench, empty planters, a white, Greek statue. In the lawn is a tree without leaves. Sky is deep blue with white clouds. Second photo is Sandy in a blue and white glider chair. She has red hair, a light green t-shirt, white shorts, and glasses. Third photo is a natural pottery colored planter in the form of an antique truck. In the bed is a large, soft cactus plant that overflows the sides. The morning light is angling across the plant and front of the truck. Fourth photo shows George is in his blue and white glider. Beyond is his wheelchair. He has blond hair and is wearing sunglasses, a blue, classic Mickey Mouse t-shirt, and dark blue shorts. Fifth photo shows 2 loaves of freshly baked bread. Each is wrapped in a clear wrapper with the type of bread printed on the label. White on the left and wheat on the right. They are on a wooden cutting board on the granite countertop. Final photo shows Sandy in the evening, in the glider.

Wheel-Tech, Part 1

This blog was originally written for CAPTIVATING Magazine  and appeared in the most recent edition. Used here with permission.

Wheels and a chair

Close up of a wheel with silver rim and spokes, and narrow, bright blue tires. In front of the tire is the lever to lock the wheel.Why do we put wheels on chairs? It makes them unstable and likely to roll.

Over a quarter century of living on wheels, I’ve learned a bit, though I am not a seating expert. (That is a disclaimer, if you didn’t recognize it carefully camouflaged there.)

Living near Orlando, Florida I see lots of different mobility aids. Some are awesome, but some are not. I recently saw a family struggling when their wheelchair was not up to their needs.

The young mother was rather obviously a full-time wheelchair user. Her chair was a garden variety, hospital type mobility aid. The father was pushing and trying to hold the hand of a child whilst the mom had a smaller child on her lap. They were struggling.  What a difference a more appropriate chair would have made to them! How do we know what we need? That is where this mini-series comes in. With some basics we can be prepared to ask questions and advocate for ourselves.

In Part 1 of our wheelchair primer let’s talk a bit about the most defining part of a wheelchair, the wheels. In Part 2, coming soon, we’ll examine the chair. Remember that a  modern wheelchair is essentially a bicycle. If we are going to ride it occasionally, or rent it on vacation, a beach cruiser might be what we need. If we are going to ride it all day, every day, and commute with it, we need something else entirely. The most defining part of the wheelchair is the wheel, or wheels since there are four of them.

Plastic spokes on plastic wheels. You get the idea.

2 black wheels with black, plastic spokes and medium width, black tires.The wheels pictured here came with my handcycle “bike.” I have since replaced them with something lighter, which makes the “bike” easier to propel. These are the basic wheelchair wheels. They are rather heavy and harder to roll. You will find these on most “off the shelf” wheelchairs. This type of wheel was on the chair I used on our example.

 

Carbon fiber, composite, and some titanium.

2 black, carbon fiber wheels with red spokes, titanium hand rims.At the opposite end of the wheel spectrum are ultra-light wheels. They are paired with  ultra-light, custom chairs. These are easy for the person who rides in the chair or a  family member to handle and require far less energy to roll. In fact, an ounce off the wheel weight is effectively a pound less to push, so a difference of 32 ounces, for example, makes a huge difference to the person who is supplying the energy.

In the middle, and the most common wheels you will find on a chair made and set up for the individual rider are the shiny, aluminum wheels and steel spokes that are shown in the top picture. These are seldom found on off the shelf wheelchairs and are practical for everyday living.

Put on some tires and get moving

Close up of a wheel with silver rim and spokes, and narrow, bright blue tires. In front of the tire is the lever to lock the wheel.

The bright blue tires in the top picture are rubber and feel like I’m pushing through packed sand. Blowing a pneumatic (air) tire in Target was rather shocking, not to mention a problem, and having my tired go down between Taiwan and London prompted me to put these on the chair I use for travel. Besides, the bright blue is fun.

Many families will need the use of a wheelchair at some point. What works in the hospital is not ideal for theme parks. Perhaps this primer will give you some kind of idea of what to get to suit your needs and help you recognize what you are seeing. A seating specialist can advise you on what works and be an advocate for you if there are third parties in the mix. Please let me know if you have questions.

Note from George… I have been somewhat absent, and for that I apologize. I’m doing some occupational therapy, which is taking considerable time and yielding good results. I think it’s time to write again! Thank you for your patience.

Picture descriptions: Top picture shows a shiny aluminum wheel and spokes with bright blue tires. Second picture is of 2 black plastic wheels and spokes with black tires. Third picture shows 2 obviously lighter wheels of black, carbon fiber with red spokes and titanium handrims. Fourth picture is a small version of the main picture. 

 

Getting personal with SCI

George is in his wheelchair beside a red, British mailbox. His blond hair is windblown. He has glasses, a red rain jacket, half-fingered gloves, and jeans. 

National Spinal Cord Injury Month

The original outline for what follows was planned as a two-part blog. I kept asking myself, “How much do they really want to read about this?” Like all good conversationalists, I answered myself. “Not that much.” If you have questions or comments, please leave them in Comments. Lots of questions will yield  lots of answers. Few questions, and I have more time to do whatever it is that consumes most of my day when I’m not looking.

My own thoughts on the subject

I am not going to sit here and tell you a bunch of facts and maybe get something wrong. What I shall do is explain from my own experiences, what I’ve learned from others I’ve known, and how I feel about things. This is from my perspective and from that view only.

A primer – it doesn’t work like you might have been told

When my grandson asked my why my legs don’t work right, I explained what we have all been told. When the brain wants something to happen, it sends a signal down a cord and tells a muscle to move. If you damage the cord, the signal doesn’t get through. He was happy with that (for now). Isn’t that the way we usually think of the spinal cord? We all know that signals go upward, as well, to tell the brain that the hand touched something hot, or the feet are in ice water.

What we don’t think about until it breaks, is that the brain not only sends signals to a muscle to contract, it also sends signals to relax. The normal position is tight. So if only that part gets interrupted, the muscles stay tight. Cut the cord entirely, and usually the muscles stay relaxed.  From the people with whom I’ve talked, it seems the people with tight muscles would prefer fully relaxed, and the people with relaxed muscles would prefer tight. I’m no exception.

SCI is classified by where the damage is on the spine. Cervical injuries result in quadriplegia. If the damage is very low in the cervical spine, the person will have arm function, but not fingers. Damage in the thoracic and lumbar areas result in paraplegia. The lower the lesion, the more trunk strength the person retains.

The tingling and pain factors

I experience constant tingling. A therapist who taught me to manage it explained that the brain has a place for everything. Every sensation sent to it goes to a specific place. When we damage the spinal cord, the nerve endings at the site of damage continue to be active but are sending stray electrical signals. The brain does not know where to put this and simply files it under “pain.” Yes, the pain is quite real. This is why you will find that people with spinal cord injury/spinal cord damage frequently meditate or use music imaging to control this static.

Pot-A-to; pot-ah-to

So what is the difference between spinal cord injury and spinal cord damage? None! Typically we think of SCI as from trauma and SCD as from a disease process. In fact, once the damage is done, no matter how, the result is the same. In recent years the two have become one.

Freedom on wheels

After SCI/SCD the wheelchair becomes a prosthetic body. It does what the lower body previously did. Many of us consider the terms “wheelchair bound” and “confined to a wheelchair” to be degrading and insulting. When people ask me how long I’ve been in a wheelchair, I will check the time and tell them the truth, “About 3 hours.”

There are 3 types of wheelchairs. Custom ultralight chairs are fit specifically for the user, even down to the precise distance the wheels are from the frame. George in a custom, titanium wheelchair. The chair is natural finish titanium, wheels that resemble bicycle wheels, and bright blue tires. He is wearing dark sunglasses, a green and white t-shirt, and dark pants. He is eating lunch outside on a deck.These are made from titanium, carbon fiber (I want that someday), and aluminum alloy that is supposedly light.

Power wheelchairs come in a million sizes and prices. The inexpensive, basic chairs work for someone who uses it infrequently, maybe can walk a bit. They are not considered suitable for someone with SCI. Power chairs for a person with SCI are more durable, tend to be larger, and usually have high backs. Some can recline or go up and down over an 8-12 inch range.

Sadly, I must include a breed of wheelchair that I call the Chrome Clunker. My first wheelchair weighed in at 65 pounds. Sandy could not lift it, and I could barely propel it. Modern chrome clunkers are usually heavy gauge aluminum and weigh about 40 pounds. They do not allow the user to be independent.

Let’s get personal

Not only are SCI and SCD the same once the damage is done, they can be blended. With spinal lesions from a rare form of Multiple Sclerosis and some damage from bruising, I fit into both categories. Like many people, I don’t mind explaining “what happened,” but I don’t get into lengthy discussions. These things are not the finest of memories. I am a T10 incomplete paraplegic. The spinal cord is not fully cut. I have some movement and feel but nothing useful. I am not sensitive to hot but am intensely sensitive to cold. Vibration feels like Medieval torture.

I drive with hand controls. There is a lever to the left of the steering column. Push down to go, in to brake. Steering is with my dominant right hand. (All sorts of driving aids are available, and even quadriplegics can drive.) Our home is Universal Design, fully accessible. Universal Design is designing something so that most people can use it without having to adapt it later. There are no steps, wide doors, there is a roll-in shower, lowered light switches, raised outlets, a pantry cabinet with roll-out shelves, and the microwave built into a lower cabinet. Floors are wood or tile, no carpet. I’m blessed to have this, as most people never have the opportunity.

Thank you for stopping by. Life on wheels is fine, just different. Was this helpful to maybe understand a friend or coworker? Questions? As I said before, I’m open to about any question, but be prepared that I might answer it. George's feet on the footrest. He is wearing blue and white Converse shoes. 

Photos: Main photo shows George in his wheelchair beside a red, British mailbox. His blond hair is windblown. He has glasses, a red rain jacket, half-fingered gloves, and jeans.  Second photo has George in a custom, titanium wheelchair. The chair is natural finish titanium, wheels that resemble bicycle wheels, and bright blue tires. He is wearing dark sunglasses, a green and white t-shirt, and dark pants. He is eating lunch outside on a deck.   Third photo shows George’s feet on the footrest. He is wearing blue and white Converse shoes. 

The second serenade cruise

Version 2 (3)

When we think of the Caribbean, our first thoughts are sand, turquoise water,  palm trees, and deep blue sky. Rightfully so, I think, but the Caribbean is a delightful blend of sights, sounds, feel, and feelings. Sandy and I recently re-created a cruise we took a few years ago, this time with a less dramatic start. Here’s a bit of history.

We had dreamed of someday celebrating our Anniversary with a special cruise. We pinched the piggy bank a bit and booked a very nice cabin on the beautiful Serenade of the Seas. All started well, for about 2 hours. I became very ill, which proved to be a faulty gallbladder. The medical staff  literally saved my life.    The entire crew was wonderful, and we managed to finish the cruise, though staying on or close to the ship at all times. I promised Sandy we’d do it again someday. When this cruise popped up again was when “The Second Serenade” trip became a reality.

Having been on several ships, the Serenade was instantly our favorite. Beautiful, clean lines and gleaming white paint outside with a huge atrium, the “Centrum,” with brass elevators and railings accent everything from shops to intimate bars to gourmet coffee. A bank of outside elevators are open with spectacular sea views as they glide up and down.  We were glad to get back aboard, this time feeling fine.

Destination – the Southern Caribbean. Cruising along at a comfortable 18 knots we relaxed and enjoyed the warmth of the sun, the ocean breeze, and the heavenly sounds of the sea. With Kindles and iPhone fully loaded, we were ready to solve some whodunnits.

Our mistake on Arbua

The first port was Aruba. It was where we made our first, and probably only, mistake. The downtown area is close to the ship, and we remembered it as nice with quaint shops and rather accessible. The plan was to visit this area and then take a taxi to the newer Palm Beach area. We soon discovered that the sidewalk and curb cuts were something of a tactile nightmare. There were some large cracks, slopes we didn’t remember, and curb cuts that took a wheelie to pass over the gaps. We forged on. With Sandy pushing and actually guiding the wheelchair and me doing the same, we used a lot of energy. The shopping area was nice, though it did not have an accessible gentleman’s restroom. We bought a bottle of mineral water from a nice lady in a small convenience store and headed for the trolly. A map of the Caribbean. It is blue with a few black areas to indicate deeper water. Each island of the cruise is noted. There is a line showing the ship's route along the north coast of Cuba, between Cuba and Hispaniola, and across the sea toward Aruba in the south. Moving east and north from Aruba are Bonaire, Curacao, St. Lucia, and Antigua.

The person at the trolly said it went, “all over the island,” and from the way she described the schedule perhaps a 75 minute ride. Free. There was an area for wheelchair users to sit in their chairs, but 2 steps up to it. For me, that is a no go. As more people came I got adventuresome and accepted some gravity defying help. But before we could get to the area, some tourists from another ship charged into the area and took the companion seats. We asked them to move, which they refused to do. So we crowded right in on top of them! At the first stop, they moved. The trolly is actually a ride up and down the streets of the old downtown, which appeared to have some economic distress. Sadly, we’d expended so much energy that we called it a day and went back to the ship.

Lovely Bonaire is a gem

Bonaire was our favorite of the islands! A small and delightful area of clean buildings, it had the fewer stores, but they were nice as well as accessible. They have worked hard on safe sidewalks, curb cuts, and access for everyone. There was a small park with venders in tents, like a permanent street fair. It is surprisingly and pleasantly quiet. Looking from the white, tented bar on the pier into the waterfront street. There are buildings of teal and blue, with white rails and shutters.
Conversations yes, but nothing to disrupt the feeling of the small island. We stopped in a small mall for a Coke before going through to the water side of the shops. Behold, a pier going into the yacht harbor that is entirely a Caribbean style bar. There was an open table in the shade with a easy route to it. It was a fun hour watching the boats and talking with our fellow cruisers. On the way back we picked up a couple of T-shirts and had a late lunch on the Serenade. I’d say Bonaire is a gem and would gladly go back.

Curacao’s colorful waterfront

Colorful, painted buildings along the waterfront. The buildings are in classic Dutch style painted yellow, brown, orange, green, teal, and blue. All have red, tiled roofs.

Curacao has upgraded its waterfront and access from the cruise port. It is a nice, smooth stroll (or roll!) into the tourist area. Along the way are a few vendors on the land side and large boulders between the sidewalk and the harbor. The air and sun were warm, the breeze refreshing. Across the way, the painted buildings for which the island is known did not disappoint. The buildings were old, the colors fresh and new. They have turned  the small fort into an area to enjoy the shade and get refreshments from one of the convenience stores. The liquor Curacao is made on the island, obviously, and it is available in multiple flavors. It would not fit into our luggage, perhaps another blog topic, and we probably wouldn’t drink it anyway. It was another late lunch on the ship.

Beautiful St. Lucia

St. Lucia might be the prettiest island in the Caribbean. It’s natural harbor is curving and relaxing the way Charlotte Amalie’s on St. Thomas is magnificent. There were exactly zero accessible tours offered for this cruise, so we visited the small shopping area and returned to our cabin’s balcony. From a high angle, the foreground is a channel of water with a pier and sailboat. Beyond are dense trees, and after that the sea and sky with a few, white clouds. From there we could experience the harbor, the live entertainment as the shopping area, and even watch the airport. We were in the shade all afternoon, and it was a truly relaxing port.

I got to compare wheelchairs with a local tour guide. Super nice guy!

Mountainous Antigua

The people of Antigua have had a hard way to go since Hurricane Irma. The small nation of Antigua and Barbuda was hit hard by the storm. Fearing the worst, the entire population of Barbuda evacuated to Antigua. The worst happened. Virtually everything on Barbuda was destroyed. They have worked hard to regroup on one, small island, and I applaud their determination.

A strip of mountainous island goes across the middle of the frame. Above is a deep blue sky with billowing clouds glowing in the sunset. The sky is reflected in a narrow body of water at the bottom. Just above the mountains is the silhouette of a frigate bird with a white body and very long, thin black wings.With three ships in port, nearly 10,000 passengers the town was beyond capacity. Not too accessible or easy to navigate originally, we ventured into a few shops, could not get into either place to get something to drink, bought a bag, thanked the nice lady in the store, and worked our way back to the ship.

Not so fast

It wasn’t time to call it a trip. More books and our balcony awaited. The distance from Antigua to the east is about the same as to Aruba in the south, and we had another two days to relax and watch the Caribbean. So the second Serenade trip was a huge success. Sandy and I had lots of quality time together, got to experience different things at each port, and came home feeling better about everything.

Thank you for stopping by. Cruising is a fun and accessible way to travel for virtually everyone. Far more than what is seen in pictures, there are sounds, tastes, smooth ports and some that are hard to navigate. I’d remind everyone to exercise caution in port towns and not venture into areas that aren’t common tourist places unless on a tour.

Picture descriptions: The main picture is taken from the waterfront in Curacao. It shows the smooth sidewalk, boulders, and the Serenade of the Seas. The ship is white and has 13 decks. The second picture is a map of the Caribbean. It is blue with a few black areas to indicate deeper water. Each island of the cruise is noted. There is a line showing the ship’s route along the north coast of Cuba, between Cuba and Hispaniola, and across the sea toward Aruba in the south. Moving east and north from Aruba are Bonaire, Curacao, St. Lucia, and Antigua. The third picture is looking from the white, tented bar on the pier into the waterfront street. There are buildings of teal and blue, with white rails and shutters. fourth picture shows the colorful, painted buildings along the waterfront. The buildings are in classic Dutch style painted yellow, brown, orange, green, teal, and blue. All have red, tiled roofs. 

 

The Amish bakery

Front of a bakery. The entire front is made of doors and windows with individual panes. The trim is painted bright red. There is cutout of an Amish lady with white hair, black bonnet, blue dress, and black apron. She is holding a basket with a napkin and cookies. Below is a sign that reads, "Fresh Amish Pies and Cookies.

Do you ever simply need to get away from the daily routine? A simple outing? We visited a small town an hour from our home. It was not a thrilling, or even particularly successful visit. Then we found a small Amish bakery and deli. I’ll tell you about lunch, but first…

We left home, crossed Sugarloaf Mountain, the highest spot on the Florida peninsula at 312 feet above sea level, circumvented Lake Apopka, and arrived in Mt. Dora. A small town, noted for its quaint shops and eateries, it is usually bustling. It is also extremely hilly. We have gone before but never were able to get an accessible parking space. We arrived in town, passed a picturesque church, and spotted an old shelter house. Perhaps there would be parking there. Yes! In the back was a space. We ate our mid-morning snack as we watched a rousing game of pickle ball. Shopping time. We trudged up and down hills over a few blocks. There were some interesting antiques and some fun things for the garden. An old cooler resembling a Volkswagen Bus from the 1960's. It is blue with a white stripe and front. On the front is a peace sign. The lid is open, and the inside is painted black.We didn’t buy anything. Manual wheelchairs are not fond of steep hills and rough curb cuts, but we made it. What we didn’t find was a lunch place that struck our fancy. It was only noon, and we decided to explore in the car. If we didn’t find lunch other than a chain, we’d go home and have a protein shake. 

Aha! A small building with red windows and doors. “Amish Bakery and Deli.” There were bright red tables and chairs on the small porch and in the front lawn. I opted for the pastrami, and Sandy chose the chicken salad, both on freshly baked ciabatta bread. Lean pastrami piled on ciabatta bread. It is cut in half, and top center is a small cup of macaroni salad.Ten dollars each seemed a bit high until we learned this included the sandwich, a side of macaroni salad, a bag of healthy potato chips, a warm chocolate chip cookie, and our choice of beverage. Yum. Each lunch comes is a red box that makes its own carrying handle. We ate half of our sandwiches, our macaroni salads, spit a bag of chips, and ate the rest for dinner. 

Life on wheels. It has its challenges but can be very rewarding if we keep searching and enjoy the simple things. 

Thank you for stopping by and sharing a common day with Sandy and me. I enjoy your comments and questions. In the works are some pictures and descriptions of the repeat of an ill-fated vacation that was very successful this time, but I got overwhelmed with things at home and haven’t finished it yet. 

Picture descriptions: Main photo is the front of a bakery. The entire front is made of doors and windows with individual panes. The trim is painted bright red. There is cutout of an Amish lady with white hair, black bonnet, blue dress, and black apron. She is holding a basket with a napkin and cookies. Below is a sign that reads, “Fresh Amish Pies and Cookies.” Second picture is an old cooler resembling a Volkswagen Bus from the 1960’s. It is blue with a white stripe and front. On the front is a peace sign. The lid is open, and the inside is painted black. Third picture is of  lean pastrami on ciabatta bread. It is cut in half. Top center is a small cup of macaroni salad. 

25 years later

George is stretched out on the sofa. He has blond hair and glasses with an orangish tint. He is wearing a black, Mickey and friends sweater with white snowflakes, black pants, black headphones, and he is barefooted.

At first I blamed it on the new shoes, the fall in the mall and the second fall later in the day. It didn’t seem right, though, as they were an exact replacement of the ones I loved. It was my introduction to MS. Later came the ice storm and a more serious fall. Finally after exhaustive tests with lots of E’s in their names and 24 vials of blood, we met with my neurologist.

There was no drama, no tension. He told us what we already knew. The MS is progressive, and there is too much spinal cord damage for you to walk again.

After a struggle, MS put an end to practicing optometry, though I never lost the love and try to stay current. I’ve been a disabled parent and a licensed swim official. I volunteered at the hospital where I edited the volunteers’ newsletter. Then one day I called the National MS Society for information and was soon a Peer Counselor.

So I’ve officially been rolling for 25 years. Somewhere along the way I learned Rock your disability! It was a life changer. If I have a message it would be that going through a progressive disease is, at times, agonizing. A few years ago my neurologist managed to sort out the MS from the injury. That explains things that are going on now, but it doesn’t change my resolve – or yours. I know my followers, and you are strong. And kind.

Thank you for your support, and this is probably the last you’ll hear of my Paraversary. Twenty-five is a big enough number, and I’ve long run out of fingers and toes. It’s time to quit counting and roll on to the next challenge.

Thank you for stopping by and for indulging me whilst I look on some emotional times. Thanks to Sandy and Cliff for their unwavering support and the sacrifices they have made to keep me mobile. I’m blessed more than what I could possibly deserve.

Photo: George is stretched out, on his side, on the sofa. He has blond hair and glasses with an orangish tint. He is wearing a black, Mickey and friends sweater, black pants, black headphones, and he is barefooted.